Tag Archives: Research

AMHF 2018 National Men’s Health Gathering

2018 National Men’s Health Gathering

Navigate Decision Aid Presentation
AMHF Men's Health Gathering 2018 - Alan White delivering presentation on Navigate Decision Aid for Low Risk Prostate Cancer

Presenting the Navigate Decision Aid Clinical Trial at the AMHF 2018 Men’s Health Gathering

I felt privileged to present on behalf of Peter MacCallum Cancer Centre at the Australian Men’s Health Forum (AMHF) 2018 National Men’s Health Gathering in Parramatta earlier this week.

The presentation was about the clinical trial currently running for the Navigate Decision Aid for men diagnosed with low risk prostate cancer.  The trial is being conducted by Peter Mac, in conjunction with Swinburne University.

Australia-wide Clinical Trial

The trial is Australia-wide and is open to men who have been diagnosed within the last three months and who are still considering their treatment options (including active surveillance).

No referral is necessary and partners can be involved too.  For further information, please contact Project Manager, Natalie Richards on 03 8559 7453 or email navigate@petermac.org.

Great gathering at Novotel, Parramatta

There was an excellent turnout to the AMHF 2018 Men’s Health Gathering.  Over the three days of the conference, I was able to attend presentations by a wide variety of men and organisations.

Aboriginal and Torres Strait Islander representation was strong, with the likes of Mick Adams, Professor Tom Calma AO, and Romlie Mokak.

I particularly enjoyed listening to Alan Philp, from the Commonwealth Department of Health.  Alan’s interesting back-story included his training as a nurse and midwife!

Raising awareness about Men’s Health

It was very pleasing to see so many men (and women) working at the grass roots level to raise awareness of men’s health issues – especially in regional and rural areas.

A big thank you to the organisers – the 9th National Aboriginal and Torres Strait Islander Male Health Convention Steering Committee and the 2018 National Men’s Health Gathering Steering Committee.

More money for prostate cancer research

Funding boost from Federal Government

Last Thursday, I was invited by Movember to attend a joint announcement of increased funding by the Australian Federal Government and Movember Foundation.

$12m for research

Funding of $12m has been committed to fund a new prostate cancer research alliance over the next four years.

Health Minister Greg Hunt with prostate cancer survivors Alan White and Rob Bishop, and Joe from Movember 2018

L-R Joe (Movember), Rob (survivor), Greg Hunt (Health Minister), and Alan White (survivor)
Photo courtesy of L Photography { live laugh love } www.lphotography.com.au

Federal Health Minister, Greg Hunt, and Movember’s Executive Director of Programs, Paul Villanti, made the joint announcement at Movember’s HQ in Richmond.  For full details, click here.

For all those people who get involved each year to raise money for Movember, this is one way in which your funds are being directed.

It was great to meet Rob, a fellow prostate cancer survivor, who turned out to live nearby.  Joe, who works for Movember, is also dealing with his own prostate cancer journey.

We got to hear about Minister Greg Hunt’s own family story of prostate cancer.  It’s wonderful to have someone at the top who really gets it.

Health Minister Greg Hunt talking to prostate cancer survivors at Movember HQ Melbourne 2018

Greg Hunt (Federal Health Minister) talking prostate cancer stuff with survivors Rob, Alan and Joe at Movember HQ, Melbourne. September 2018.
Photo courtesy of L Photography { live laugh love }
www.lphotography.com.au

Many thanks to Sam from Movember for inviting me to attend and for her terrific organisation of the event.

NBN News gave good coverage of the announcement.

Clinical trial up and running for Navigate

Recently diagnosed with low risk prostate cancer?

Or know someone who has been?

Peter Mac Cancer Centre is running this trial, in conjunction with Swinburne University of Technology.

Men with low risk prostate cancer, and their partners, are needed to take part in the study which is assessing Navigate, a new online tool designed to help navigate their treatment.

For more information on the trial

Please contact Project Manager Natalie Richards on 03 8559 7453 or email navigate@petermac.org.

It always helps to spread the word about exciting new developments like Navigate, so please tell your friends, family and co-workers.  Someone always knows someone else who has recently been diagnosed with prostate cancer.

 

Navigate Trial – Looking for men with low-risk prostate cancer

Recently diagnosed with low-risk prostate cancer?

A trial is underway through Peter MacCallum Cancer Centre in Melbourne and this trial needs men like you.

‘Navigate’ is an online decision aid resource for men diagnosed with low-risk prostate cancer and their partners.  It is also the name of the research project which is guiding the development and testing of the Navigate website.

The Navigate research trial is being run nationally to test the decision aid through a randomised controlled trial.

The beauty of this trial is that men can go directly to the website, or ring the Navigate project team.  There is no need to get a referral from your GP or specialist.  Like all clinical trials, there are criteria which need to be met before a person is accepted.

What is a ‘decision aid’?

The widely respected Mayo Clinic in America defines a decision aid as:-

… a tool used to inform patients about available treatments, along with potential benefits, risks and costs, during clinical encounters.  Decision aids use a shared, informed approach to clinical decision-making.

Receiving a prostate cancer diagnosis usually comes as a big shock.  Then comes the need to make decisions, based upon a range of individual factors, such as:-

  • How aggressive or advanced is the cancer?
  • How old is the man who has the cancer?
  • Does the man have other health issues?

As I discussed in an earlier post about decision making and uncertainty, it is often very difficult and sometimes overwhelming for men to choose what to do or what not to do about their prostate cancer.

Decision aids are tools that are designed to help people understand their treatment options, learn about the pros and cons of each option, and to reduce their likelihood of making a decision that they later regret.

There is even a term – decisional regret – as well as a scale to measure that regret!  The Navigate decision aid is specifically targeted at men who have recently been diagnosed with low-risk prostate cancer (and their partners).  Using Navigate to understand your treatment options and to decide which option best suits you – what you consider to be important – may reduce your risk of decisional regret.

Are you interested?  Or do you know someone else who may be interested?  Great.  Click here to view the Navigate brochure PDF.

Navigate Study: Development of a website for men diagnosed with low risk prostate cancer

Navigate Contact Details

The Navigate Research Team
Peter MacCallum Cancer Centre
navigate@petermac.org

PH: (03) 8559 7453

There is even a Facebook page – click on the image to take you to the Navigate Prostate Cancer Decision Aid page.

Navigate decision aid for low risk prostate cancer

Movember progress at Day Ten

Okay, Day Ten of Movember has arrived and is swiftly departing.  The Mo Sistas at Shine Health Wellbeing Centre have been out in force today to support the cause.

Donations are steadily trickling in, with some very generous donors indeed.  Thank you to all those who have kindly given so generously.

There’s still plenty of time to support Movember (and my mo) – to raise awareness about men’s health and support research in this area.  You can donate directly to my Movember page at http://mobro.co/alanwhite256 or if you are in the Black Rock area, drop in to Shine and make a donation in person.  Receipts are available, of course, and you can pick up your free men’s health info bag.

Meanwhile, you can check out the pictures below to see the state of bristle growth on my upper lip and see how much better the Mo Sistas are doing.

September is Prostate Cancer Awareness Month

It’s been a long time between posts, but this is an important month – Prostate Cancer Awareness month, in case you hadn’t noticed.

Question – when was the last time you visited your GP for a check-up?

You need check-ups routinely to keep track of your health.  The one I’m asking you to remember most of all this month is your PSA levels (prostate specific antigen).  Any rise in PSA levels may indicate changes in your prostate gland (not necessarily cancer).

So, do you have the balls to get your prostate checked?

As part of Prostate Cancer Awareness month, the Beaumaris Motor Yacht Squadron in Beach Road, Beaumaris, is holding a Big Aussie BBQ.

From breakfast to brunch on Saturday 17th September, they will be providing food, coffee, raffles (with great prizes) and a stunning view of the Bay.

Starting at 8am and running until noon, the funds raised will be given to the Prostate Cancer Foundation of Australia (PCFA).  Gold coin entry will get you in the door.

Photo of Alan White and Ross Popplewell at Beaumaris Motor Yacht Squadron for Prostate Awareness Month 2016

Alan White and Ross Popplewell, Commodore of Beaumaris Motor Yacht Squadron

I will be there in my capacity as a volunteer Men’s Health Peer Educator, representing the Department of Veterans’ Affairs. There will be free men’s health showbag packs to take away, with information supplied by:

So, if you are in the Bayside area this coming Saturday morning, bring the family along to enjoy the view, the food, the free men’s health information, and a good chat about health or anything else that comes to mind.

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New Prostate Cancer Treatment Possibilities

Diagram showing MRI-guided biopsy of the Prostate

Technology is certainly moving quickly concerning prostate cancer diagnosis and treatment. Biopsies can now be made more accurate by utilising specific MRI scanning and ultrasound together to target the cancer cells.  I’m sure you are familiar with the old “shotgun approach” where multiple needles are inserted and you just hope that one of them hits the target.  With this new approach, there is far greater accuracy with a more defined biopsy result.

For a proper description of this and other ground-breaking techniques, I suggest you have a look at Professor Phillip Stricker’s website.  Professor Stricker has been pioneering therapies such as the NanoKnife, the use of high-frequency electrical current, and Focal Therapy, where ultrasound is used.  These therapies can lead to fewer side-effects, particular in the area of erectile dysfunction and incontinence – neither of which men want to deal with!

It is important to remember that not all men with prostate cancer will be suitable candidates for any of the above treatments.  Each man will need to discuss with his specialist the range of possible treatments available for his specific set of circumstances.  If a man is uncertain or in doubt, I believe that it is always wise to consider a second opinion.  Your health is your responsibility.

It’s Movember

In case you hadn’t noticed, there may be more than the usual number of blokes walking around with moustaches in various stages of growth.

Yes, it’s Movember and Mo Bros and Mo Sisters are raising money towards research for men’s health – in particular, prostate cancer, testicular cancer and depression.

I thought you might like to see how my Mo is coming along – rather salt-and-peppery at Day 16.  Compare the lush growth from my time in Vietnam with the Air Force – a thick, black caterpillar.

Alan - 16 Nov 2015Alan - Large portrait in uniform 1970For those of you who may wish to contribute a donation towards Movember’s research activities, you can click here to donate via my page (or, of course, you may choose to donate to any of your friends who may be sporting some growth).

Men’s health is everybody’s business.