Tag Archives: Prostate cancer

AMHF 2018 National Men’s Health Gathering

2018 National Men’s Health Gathering

Navigate Decision Aid Presentation
AMHF Men's Health Gathering 2018 - Alan White delivering presentation on Navigate Decision Aid for Low Risk Prostate Cancer

Presenting the Navigate Decision Aid Clinical Trial at the AMHF 2018 Men’s Health Gathering

I felt privileged to present on behalf of Peter MacCallum Cancer Centre at the Australian Men’s Health Forum (AMHF) 2018 National Men’s Health Gathering in Parramatta earlier this week.

The presentation was about the clinical trial currently running for the Navigate Decision Aid for men diagnosed with low risk prostate cancer.  The trial is being conducted by Peter Mac, in conjunction with Swinburne University.

Australia-wide Clinical Trial

The trial is Australia-wide and is open to men who have been diagnosed within the last three months and who are still considering their treatment options (including active surveillance).

No referral is necessary and partners can be involved too.  For further information, please contact Project Manager, Natalie Richards on 03 8559 7453 or email navigate@petermac.org.

Great gathering at Novotel, Parramatta

There was an excellent turnout to the AMHF 2018 Men’s Health Gathering.  Over the three days of the conference, I was able to attend presentations by a wide variety of men and organisations.

Aboriginal and Torres Strait Islander representation was strong, with the likes of Mick Adams, Professor Tom Calma AO, and Romlie Mokak.

I particularly enjoyed listening to Alan Philp, from the Commonwealth Department of Health.  Alan’s interesting back-story included his training as a nurse and midwife!

Raising awareness about Men’s Health

It was very pleasing to see so many men (and women) working at the grass roots level to raise awareness of men’s health issues – especially in regional and rural areas.

A big thank you to the organisers – the 9th National Aboriginal and Torres Strait Islander Male Health Convention Steering Committee and the 2018 National Men’s Health Gathering Steering Committee.

Attention all men (and women with men in their lives)

Reminder

FREE Information Evening
Prostate Cancer and You

Have you booked yet?  If not, get cracking!  Seats are strictly limited and refreshments will be available.

Wednesday, 13th June 2018 from 6:45pm at Hampton Senior Citizens’ Centre, 14 Service Street, Hampton.

RESERVE YOUR SEAT NOW – www.trybooking.com/VEEY

See you there!

Reminder about free information evening about prostate cancer in Hampton

Reminder – Free Information Night in Hampton, Victoria. Prostate Cancer and You. Wednesday 13 June 2018. Book now.

Information Evening – Prostate Cancer and You

FREE PROSTATE CANCER INFORMATION EVENING

Over the past few months, a colleague (Tony) and I have been busy organising a free information evening about Prostate Cancer in our local area. There is always so much to learn about this topic – from diagnosis to treatment options, from support services to self-care and rehabilitation.

Prostate Cancer and You. Information Evening about Current Treatments and Support.

KEY SPEAKERS

Four key speakers will be presenting information to help men and their partners deal with Prostate Cancer. Those speakers are:-

Dr Daniel Moon, Urologist
Daniel will discuss current treatment options.

Sarah Rudd, Continence Physiotherapist
Sarah will discuss current approaches to incontinence.

Kate Williams, Exercise Physiologist
Kate will focus on tailored exercise programs for recovery and beyond.

David Gray, Urology Nurse
David will cover options for care during and after treatment.

EVENT DETAILS

As there will be refreshments available, and the venue has limited seating, bookings are essential.

The event will be held at the Hampton Senior Citizens’ Centre (see map below) on Wednesday, 13th June 2018.

Registration begins at 6:45 pm for a 7:00 pm start, and the evening is due to conclude at 9:30 pm.

Book now at www.trybooking.com/VEEY to secure your tickets.  Bookings close Wednesday 6th June 2018, so don’t delay.

FURTHER ENQUIRIES

Contact me on 0407 617 800 or Tony on 0405 834 804.

Or you can contact me via email to alan@theprostatezone.com.

SPONSORSHIP THANKS

This event is proudly presented by the Bayside-Kingston Prostate Cancer Support Group.

Kindly sponsored by:

Bendigo Bank Dingley Village Community Bank Branch LogoLions Club International Logo

 

Decision making and uncertainty

When men get a prostate cancer diagnosis, the next discussion is usually about treatment. The stage of the cancer will determine the type of treatments on offer.  Generally, with a diagnosis of low-risk, low-grade prostate cancer, men will often have several options available to choose from.

Depending on a range of criteria, men can consider active surveillance, surgery, or radiotherapy.  There is also the NanoKnife®, which is currently available in Sydney and Queensland.

Active surveillance delays dealing with the two major side-effects of surgery and, to a lesser extent, radiotherapy – incontinence and erectile dysfunction.

Whatever treatment men are looking at, all bring uncertainty.  Common concerns include:-

  • Am I making the right decision?
  • Will the side-effects be worse than expected or not as bad?
  • What is really the best treatment option for me?
  • Will there be other effects from the treatment that I don’t know about?
  • I’ve heard stories about other men – will those things also happen to me?

To work through this maze of questions and worries, it can be helpful to visit a Prostate Cancer Support Group to hear other men’s experiences.  Just remember, every man will respond differently to even the same treatment.  There is no one size fits all treatment. Obtain a second opinion to guide you towards what is best for you, not others.

Even with all the information gathered, there can still be that internal nagging voice – “I’m still not sure”.

Part of the problem is that men, in general, are fixers.  We have a problem and generally we know how or what to do to fix it, but prostate cancer is a whole different kettle of fish. At the low risk stage, men are presented with options, and fixing the problem is not at all straightforward.  There are so many shades of grey.

For many men, they would love to hear “this is the treatment for you, these are the side-effects, and it will work”.  End of story.  Unfortunately, there might still be some level of doubt.  If you can step back for a moment and look at other events in your life where there has been some uncertainty around decision making.  Consider what you did then with the uncertainty, and what you learned that might help you now.

There is no simple answer when dealing with the uncertainty of decision making, and the consequences of that decision, relating to prostate cancer.

If you are stuck in this stage of uncertainty, seek out relevant information, talk to support groups or individuals who might have been in a similar situation.  As uncomfortable as the uncertainty is, be prepared to sit with it, with the anxiety of these uncharted waters.  Talk to your family, or close friends.  The Cancer Council has a help line (13 11 20) where you can talk one-on-one to work through your concerns.

Consider counselling to guide and support you during this transition period, to determine what is the best option for you and that you can you live with the decision that you make.

You don’t have to do this alone, seeking and asking for help shows strength, not weakness.

Lastly, consider visiting the Navigate website, an on-line decision aid for men diagnosed with low-risk, low-grade prostate cancer.  Navigate is a project being run by the Peter MacCallum Cancer Centre in Melbourne, and I am the consumer advocate on the project.

Once you are registered on Navigate, you will be selected for further involvement which will go some way to assisting you to make your decision, and hopefully reduce some of the uncertainty that is churning inside you.

My book has arrived in time for Movember

After a long gestation, my book has arrived from the publisher, Busybird Publishing.

Busybird staff, Kev and Les, with author Alan White

Alan White, author, with Kev Howlett and Les Zigomanis of Busybird Publishing.

With Movember fast approaching (and, yes, I’ll be growing the mo), the book has arrived at the perfect time.  To watch my progress and make a donation to Movember, click here.  To grab your copy of the book, click here.

Although this is my story of the prostate cancer journey, I think you’ll find there is information that will be relevant to many men with a prostate cancer diagnosis.  Not to mention their partners.  My wife has contributed her experience and helpful suggestions to keep you both happy.

A big thank you to Blaise, Les and Kev at Busybird.  You are an awesome team and have been great to work with.

Alan White, author of We've Lost My Prostate Mate, holding a copy of his book at the publisher, Busybird

Author, Alan White, with his newly released book – We’ve Lost My Prostate Mate… and Life Goes On.

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A day at the yacht club

Last Saturday, we had perfect weather to promote men’s health at the Beaumaris Motor Yacht Squadron in beautiful bayside Melbourne.

Tim Wilson, Federal MP for Goldstein, turned up to show his support and pick up his free men’s health information pack.

Tim Wilson, Federal MP, and Alan White at Beaumaris Motor Yacht Squadron

Grateful thanks to Andrology Australia, Foundation 49, PCFA and DVA for supplying the valuable literature in each man’s showbag.  If you missed out on a bag, you can drop in to Shine Health Wellbeing Centre, 35 Bluff Road, Black Rock to grab your copy.

Thanks to Ross Popplewell, Commodore of the BMYS, who instigated the Big Aussie BBQ at the Squadron.  Thanks also to Vern, Tony and Paul from Bayside Kingston Prostate Cancer Support Group for turning up and handing out the showbags.

I’m already looking forward to next year’s event at the Squadron.

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September is Prostate Cancer Awareness Month

It’s been a long time between posts, but this is an important month – Prostate Cancer Awareness month, in case you hadn’t noticed.

Question – when was the last time you visited your GP for a check-up?

You need check-ups routinely to keep track of your health.  The one I’m asking you to remember most of all this month is your PSA levels (prostate specific antigen).  Any rise in PSA levels may indicate changes in your prostate gland (not necessarily cancer).

So, do you have the balls to get your prostate checked?

As part of Prostate Cancer Awareness month, the Beaumaris Motor Yacht Squadron in Beach Road, Beaumaris, is holding a Big Aussie BBQ.

From breakfast to brunch on Saturday 17th September, they will be providing food, coffee, raffles (with great prizes) and a stunning view of the Bay.

Starting at 8am and running until noon, the funds raised will be given to the Prostate Cancer Foundation of Australia (PCFA).  Gold coin entry will get you in the door.

Photo of Alan White and Ross Popplewell at Beaumaris Motor Yacht Squadron for Prostate Awareness Month 2016

Alan White and Ross Popplewell, Commodore of Beaumaris Motor Yacht Squadron

I will be there in my capacity as a volunteer Men’s Health Peer Educator, representing the Department of Veterans’ Affairs. There will be free men’s health showbag packs to take away, with information supplied by:

So, if you are in the Bayside area this coming Saturday morning, bring the family along to enjoy the view, the food, the free men’s health information, and a good chat about health or anything else that comes to mind.

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